Two Mondays ago, Ian was supposed to go over to Abbott to get set up for his radiation simulation. He had spiked a really high fever in the night and was still shaking and shuddering so badly that he couldn’t lay still enough for the MRI. They wheeled him back over, saying “Well, we’ll try again on a different day.”
Everything had been happening so fast, at least it sure felt fast to us. We were still reeling with the shock of it all- finding the tumor, removing the tumor, the devastating effects of the surgery, and then the devastating news of the pathology results, and they were thinking he could get started with radiation a few days less than 3 weeks after surgery!
I felt horrible that my son was so miserable with that fever, but part of me was relieved- relieved to have a pause, a day to stop and think, to research, to ask questions, to ask for second opinions.
Some would call it a coincidence,
but I truly believe that the Lord did that.
I asked about the radiation. Did he really need it? They got the entire tumor, wouldn’t the chemo do the work of taking care of any extra cells floating around intending to multiply? If he did need radiation, did he really need that much? Really? Why? No, really, I want to know, I want to know why, exactly why. Who decided this and how did they come to this conclusion?
The doc listened, and talked, and told me about another option, and, well, here we are…
756. Finding the tumor when we did
758. An incredible neurosurgeon
760. Ian finally coming out from under anesthesia
761. Medical advancements like Narcan (Ian required 2 doses of the anti-narcotic medication after a small dose of Morphine caused him to stop breathing)
762. An incredible PICU with its incredible nurses
763. After a week in the PICU (we were told to expect A night in PICU and a 7 night total stay), Ian graduating to the 7th floor
764. A clear spine MRI, with no signs of metastasizing tumors
765. No malignant cells in Ian’s cerebral-spinal fluid
766. Hope that the effects of the Posterior Fossa Syndrome will fade, and our big, strong, healthy & agile son will be big, strong, healthy & agile again!
768. Ian’s headache pain easing up some
769. Not needing a shunt!
770. Some very obvious signs of the Lord’s leading in taking care of Ian, and the rest of us, on this journey- the medulloblastoma journey- I’m looking forward to sharing so much more, when I’m not so tired!
How you can help-
I post these links for those who have asked, but please do not feel obligated. I want to stress that we covet your prayers more than anything!
Here is the link to the FundRazr app we have set up (through Paypal and facebook, though I don’t believe you actually need an account with either)
***eta- I finally added a widget to the left sidebar. For some reason, Paypal has 2 completely different kind of widgets for blogs and facebooks, so there are actually 2 different widgets, with 2 different running totals (both going to the same account!), which is kinda weird, but whatever. They’re just there because so many people have asked us how they can help, and it just makes it so easy for everyone.
Also- we’d love it if you’d join in prayer at the Praying for Ian Williams facebook event page that Ian’s friend Alex started as soon as he heard the news. It’s been amazing to see the numbers grow, and to see so many states and countries represented!
If you’re new here, to this blog, to our story, to Ian’s story-
To learn about about me, about us, stop by the about page for a brief introduction.
To learn more about Ian’s story, the story of a healthy boy who just needed a sports physical so he could play his senior year soccer season, who ended up discovering that he had a brain tumor- to read the whole story, start here- Pediatricians, MRIs, and Neurologists, Oh My! Then scroll down past the comments on each page for the link to the next post.
Welcome, and thank you for your prayers!