We’re always aware, now, but 3 years ago I couldn’t have told you that September is Childhood Cancer Awareness Month. I couldn’t have told you, because 3 years ago I didn’t know.
But 2 years ago, now that’s a different story. 2 years ago I knew.
2 years ago I spent the month of September in another state, my family uprooted and moved to Bloomington, Indiana (lovely town, by the way!!), so our oldest son could receive Proton Therapy, a newer and more specialized form of radiation, for treatment for a childhood cancer.
On the verge of manhood, just weeks away from his 18th birthday, Ian was diagnosed with Medulloblastoma, an aggressive cancer of the central nervous system. His tumor was localized, it had not spread to his spine, nor were there any distant metastasis. His surgery was successful, as far as removing the tumor goes, but it left him a differently-abled young man, suffering from a pretty profound case of Posterior Fossa Syndrome, which he still struggles to recover from, 2 years later.
A year ago, I knew that September was Childhood Cancer Awareness Month. A year ago, I was trying to act normal as we processed the very real possibility that Ian had already relapsed, all the while knowing that relapsed medulloblastoma is almost universally fatal, having already been told that they’ve never had a survivor of relapsed medulloblastoma at our hospital…
Over the course of Ian’s treatments, we watched my youngest sister’s son, Tenney get diagnosed with a childhood cancer, struggle through aggressive treatments for his childhood cancer, and ultimately lose his battle against childhood cancer.
I’m sharing this video in hope, hope for the ripple effect to spread far and wide, creating larger and larger waves in the world of childhood cancer research. Our children are our future, and they need better, more curative and less toxic and destructive treatments. Please consider a donation to St. Baldrick’s or CureSearch during the month of September. Our family thanks you!
Wondering what else you might be able to do to help someone going through the fire in the battle with childhood cancer? Read this excellent post from fellow Momcologist, Mindi, about what YOU can do!